Autism support group discriminates against Autistic people.
This is a complaint against the Lehigh Valley Chapter of the Autism Society of America and the ARCH (Autism Resource Community Hub.
The Lehigh Valley Chapter of the Autism Society of America meets at:
The ARCH of Lehigh Valley
1347 Hausman Rd.
Allentown, PA 18104
My complaint about the Lehigh Valley Chapter of the Autism Society of America is that it is run by parents of Autistic children that discriminate against their own children when they won't even allow them to participate at the meeting. They don't accept the involvement of Autistic Children by allowing them to speak at the meeting. They won't allow Autistic children be involved in their own advocacy.
The LVASA discriminates against Autistic adults. This meeting that claims to help Autistic children, does not continue to help those children after they become adults. The LVASA does not address the needs the children will have after they become adults.
I have known for my entire life that I am different. In 1999 Aspergers Syndrome was beginning to become more known. When I discovered Aspergers Syndrome, I realized that this is the explanation of what my difference is.
In 1999 I looked for an Autism resource to go to for help. I found the LVASA to be the only Autism Resource to be found in the entire Lehigh Valley. When I went to the meeting, I was not welcomed and accepted and understood. They do not want to hear anything I have to say. The meeting is run by and attended by parents of young children. The LVASA does not allow their Autistic children to speak and participate at the meeting. The meeting is perpetually run by parents of young children. As the children get older, the parents of Autistic adult children cease to exist at that meeting. There is a perpetual inflow of parents of young children with a fresh diagnosis of Autism. The parents who attend the meeting have no desire to listen to any Autistics who try to participate at the meeting..
Since 1999, I have been asking the question, "Where are the Autistic adult group services?" I have been asking this question to the Lehigh Valley Chapter of the Autism Society of America since 1999. Every place I have been to where I have asked this question, I am told that they don't know the answer, and I am referred to someplace else to ask this question.
I have to report child abuse. This is happening to Autistic children. The parents are not listening to their Autistic children. This abuse continues to happen after the children become adults. The LVASA ignores their own Autistic children after they have become adults. Autistic adults are put into the position of having to fend for themselves when all of the typical Autism organizations cater only to the parents of young Autistic children. It is necessary that there should have to be laws established that will protect Autistic adults from continuing child abuse.
Aspergers Syndrome is on the spectrum of Autism. In 1999, the only local resource in the Lehigh Valley that dealt specifically with Autism is the Lehigh Valley Chapter of the Autism Society of America. Today in 2012, the only local resources in the Lehigh Valley that deals specifically with Autism is the Lehigh Valley Chapter of the Autism Society of America and the ARCH (Autism Resource Community Hub.
The Lehigh Valley Chapter of the Autism Society of America has a very strict and firm policy not to dispense any services to Autistic people. They are not a service provider. This policy translates into discrimination. The parents go to this meeting. But if Autistics were to go to the meeting, the parents who run the meeting define that as a service given to Autistic people.
The LVASA is supposed to provide a service. The support group they provide has to be available to Autistics without discrimination. The LVASA is a referral service. I have requested an agency that provides group services for Autistic adults. No such group services exist in the Lehigh Valley. The LVASA is supposed to represent Autistic people and advocate for Autistic people, so that group services for Autistic adults comes into existence and becomes available for Autistic adults.
The LVASA claims they are not a service provider. This has resulted in the LVASA not providing any help to Autistic people. When group services for Autistic adults doesn't exist, the LVASA has been perfectly content with that. When a necessary service does not exist, and needs to exist, then action needs to be taken to make it exist.
The only possible way for the LVASA to properly represent Autistic people is to include Autistics at the support group without discrimination. Unfortunately this currently is a bad situation where the non Autistic people who go to the LVASA have absolutely no desire to listen to Autistic people. When it is the parents who don't listen to their children, this is child abuse. In a perfect world, parents would want to listen to their children and the LVASA would be a place where Autistics are welcome to attend and to speak.
Since I discovered Aspergers Syndrome in 1999, I have noticed a total void of Autistic adult services where I would be able to find other people that are like me and that I fit in with. The Lehigh valley Autism society of America has existed this entire time. That is the only place I found with "Autism" in the title where I expected to fit in and be understood. It is the only place where meetings were held to be able to discuss the topic of establishing the proper group services that I need.
The only existing Autism support group meetings that I found are perpetually run by mothers of young children. Where are the fathers? Why is there so little involvement of the fathers? I don't believe all of the fathers are negligent and don't care about the well being of their children. I think what is happening is that the mothers are not listening to anyone who does not agree with their own twisted philosophy. The mothers are rejecting the fathers' input. And they are completely ignoring their children's input.
The Lehigh Valley Chapter of the Autism Society of America has not evolved at all since I first went to it in 1999. It continues to be perpetually run by mothers of young Autistic children.
It is very frustrating that the only Autism Resource I found is the Lehigh Valley Chapter of the Autism Society of America that is run by a group of parents of young children. In 2012 it still continues to be extremely frustrating that the only Autism Resource in the Lehigh Valley is the Lehigh Valley Chapter of the Autism Society of America that is still run by mothers of young Autistic children. None of the parents that were going to the meeting in 1999 continued to attend the meeting or form a separate meeting that focuses on Autistic adults.
I do not fit into the typical human services where I have found mostly people with Depression, Bi Polar, and Schizophrenia. The typical human services continues to have a lack of a presence of other Autistic adults that I could relate to.
I still continue to keep asking the question where are the Autistic adult group services? No one has the answer to this question because no such services exist.
The solution to this problem will only come about with the full inclusion and participation of Autistics to have the full human rights required to be able to tell the state that we need group services. The state has a required obligation to provide group services.
The parents at the Lehigh valley Chapter of the Autism Society of America are discriminating against Autistics from attending an Autism support group meeting. The parents are discriminating against their own children.
The experiment of running the meeting as a parent meeting is a complete failure. They completely ignore listening to Autistic people expressing what they need. The meeting has avoided the subject of establishing group services for Autistic adults. There can no longer be an exclusion of Autistics at that meeting.
The parents claim they are distressed by the presence of any Autistics who show up at the meeting that want to express what they need.
This is a hostile planet for Autistic adults. I am very distressed about living on a planet that doesn't understand me. I do not suffer from autism. I suffer from how people treat me based on their misunderstanding of Autism.
It is a very distressing situation for Autistic adults when there are no existing group services to go to. The only existing place to go to for help is an Autism support group meeting that discriminates against Autistic people. Autistic people are not welcomed at any of the existing Autism support group meetings that are run by parents who discriminate against the very people they are claiming to help.
It is very distressing for Autistic people when there is no place to go where they can be safe. There is a need for Autistic people to have a place where they will be accepted and understood.
I want group services for Autistic adults. I have discovered that Autistic adult group services does not exist. I get absolutely no help from the Autistic organizations that are run by parents. They tell me to do it myself. The parents put on this act like they are helping their children. When they become adults they may want to have group services with other Autistic adults. The response from the parent controlled Autism groups is that as soon as their children become adults, they have to do everything themselves.
The parents at the meeting have no sense that they discriminate against Autistics when they ignore Autistics and don't allow them to participate at the meeting. When people commit a crime, while having absolutely no awareness that they are committing a crime, that is the very definition of insanity. The parents that run Autism support group meetings are insane. It is insane that the parents of Autistic children fulfill their own needs for their own support group while they neglect their own children who go on without a support group. It is insane that the parents are thinking only of their own safety when they claim they are being violated when an Autistic person attempts to attend the meeting to speak about unfulfilled needs that have to be met.
The Autistic person needs a safe place to go to to be understood where there are other Autistic people that they can relate to. When the only existing local resource I have found is the Lehigh Valley Chapter of the Autism Society of America, the first priority an Autistic support group meeting has to be supportive to is the Autistic person.
The Autism Society support group meeting has to have regular meetings that focuses entirely on civil rights.
They say that they will continue to be supportive to their children when they become adults. The history of that meeting shows that the parents stop being supportive of the adult children and the meeting is perpetually attended by only parents of young kids.
Civil rights applies to young children. The subject of civil rights applies to all ages. There's just some differences on what the needs are for each stage of life.
The night I was there, there was a speaker who was talking about the subject of ABA. Instead of trying to control and modify behavior, what needs to happen is to listen to the Autistic person. It is very frustrating for me that I speak and write perfect English, and nobody understands anything I say. It has to be very frustrating for a nonverbal Autistic who cannot communicate the usual way, and nobody can understand what they are trying to communicate.
When an Autistic person shows anger and tantrums, I propose not approaching it as just a behavior problem that has to be corrected. Someone has to hear and understand what they are trying to communicate and be an interpreter for them.
I am going to stand up for my right to attend that meeting. No one is going to bully me by accusing me of being the bully just because I excercise my right to attend that meeting.
The meeting is not supposed to be only about non verbal Autistics. It is supposed to be about all levels of functioning.
The meeting is not supposed to be a women only meeting. Fathers have to attend the meeting.
The meeting is not supposed to be only about children. There are lot of the same exact issues that apply to children and adults. There are specific isuues pertaining to children and adults. The meeting is supposed to be about all Autistics, not a specific age group.
The meeting is not supposed to be for non Autistic only, with the exclusion of Autistic people. My right, and the right of any other Autistic to attend that meeting has to be recognized.